Morning my lovelies. Today I’m delighted to be on the blog tour for Patience by Victoria Scott, a thought-provoking, touching and entertaining story…….
about the book
Author: Victoria Scott
Genre: Contemporary Fiction
Estimated page count: 432
Formats available: Paperback, Hardback, Audiobook and eBook. Available on Kindle Unlimited
Publisher: Head of Zeus (5 Aug. 2021)
Tour organised by: Publisher
If you were offered the chance to be ‘normal’ would you take it? Do we even know what ‘normal’ is?
The Willow family have been through a lot together. Louise has devoted her life to her family and raising her disabled daughter, Patience. Pete now works abroad, determined to provide more, even if it means seeing less of those he loves. And Eliza, in the shadow of her sister, has a ‘perfect’ life in London, striving to live up to her mother’s high standards.
Meanwhile, Patience lives her life quietly, watching and judging the world while she’s trapped in her own body. She laughs, she cries, she knows what she wants, but she can’t ever communicate this to those who make the decisions for her. Patience only wants a voice, but this is impossible.
When the opportunity to put Patience into a new gene therapy trial to cure her Rett syndrome becomes available, opinions are divided, and the family is torn.
The stakes are high, and they face tough decisions in the hunt for a normal life. But is normal worth it? What do we even consider normal? Is Patience about to find out…?
Patience is a young woman with opinions, thoughts and feelings. But she can’t express these to anyone. Trapped in her body having been diagnosed with Rett syndrome, she can only keep the things she knows, thinks and feels to herself. Her Mum Louise cares for her, while her Dad Pete works abroad to bring in as much money as he can.
One day Louise is offered the opportunity for Patience to take part in a medical trial – something the could reverse the Rett syndrome and give Patience a ‘normal’ life. But opinion is divided within the family and they must make a decision….what will it be? And what does Patience want?
This is a moving and thought-provoking story. The fact that we get to know Patience as nobody else does, and get to understand her inner thoughts and feelings is amazing. It really highlights the fact that there are so many people out there with disabilities who have their own thoughts, feelings and opinions, yet are unable to communicate it, leaving their life decisions up to those that care for them. The author has done a beautiful job of conveying this.
The story isn’t just told from Patience’s point of view though, but from Louise, Pete and her sister Eliza’s too. I really felt like I knew the family and could understand their worries and concerns about the decisions they faced. It will take you on an emotional rollercoaster with all members of the family, and again, the fact that Patience has a voice in this, albeit a silent one, is moving and inspiring.
If you’re looking for a story that is beautifully and sensitively written, that will not only move you and take you on an emotional journey and give you a family you will care about and be invested in, then this is for you. And on top of all that, this will help you to understand Rett syndrome and what it’s like to care for someone with a severe disability. Highly recommended by me.
about the author
Victoria Scott has been a journalist for more than two decades, working for a wide variety of outlets including the BBC, Al Jazeera, Time Out, Doha News and the Telegraph. Alongside her love of telling real-life stories, she has also always written fiction, penning plays, stories and poems ever since she first worked out how to use her parents’ electric typewriter.
When she’s not writing, Victoria enjoys running incredibly slowly, singing loudly, baking badly and travelling the world extensively.
Victoria is a Faber Academy graduate. She has a degree in English from King’s College, London and a Postgraduate Diploma in Broadcast Journalism from City University, London. She lives near London with her husband and two children, and works as a freelance journalist, media trainer and journalism tutor.
follow the tour
Thanks to the team at Aria for inviting me on to the tour, and to Aria and Victoria for my copy of the book. All views and opinions are my own.